The one thing I hate about having end stage CF is that I have to wear oxygen 24/7. First of all my nose is all ways blocked and I have to wear the nasal prongs which rub the back of my ears making them red.
Could you imagine having to move round the house with a lead trailing behind you while other people may step on the lead ripping it off your face.
One of the other things that is a pain is having to get dressed as It’s like a race you have to take the oxygen off and as quickly as possible so you can put your bra and top on then quickly hook it back on so I don’t lose to much puff. It may not seem like a big deal but having to do that everyday sucks!
If you ever have time maybe you should try tying a bit of string to one corner of the house then the other end you hold and see how long you can stand being on the other end of the string.